Nov 135 min readNavigating the Bluesky 101You might have noticed that there has been a mass exodus to Bluesky from Twitter since the US Presidential election.
Oct 293 min readThe Pedantic Zebra Book ClubHalloween is approaching, and we missed ‘hot girl summer’ so we are opting for ‘goth girl autumn’ instead with a cosy book club.
Oct 1727 min readDear Miranda,Tales of the Unexpected: A letter reaching out to Miranda Hart to discuss her book and approaches to ME, Long Covid and Lyme.
Sep 189 min readOnline Security for the Disabled and Chronically Ill CommunityHints and tips to stay safe and protect your digital life.
Jun 2822 min readTin Foil Hat Territory? The Gupta Program, Lightning Process and the BPS in Long Covid and ME.This response to the wide-ranging concerns about brain retraining such as the Gupta Program and Lightning Process aims to inform patients
Nov 14, 20238 min readA Very British Consultation...LCA's response to the DHSC ME/CFS Delivery Plan...
Sep 12, 202311 min readThe Iceberg Effect - when Drs don't listen to patients Response to the Guardian Hall article 'ME/CFS guidance that discourages exercise is flawed, says researchers' & JPPN misinformation
Sep 12, 20237 min readDear Society of Occupational Medicine, will you listen to people with M.E. and Long Covid?Kirstie Sivapalan writes to the Society of Occupational Medicine about the mass blocking of pwME
May 31, 202315 min readThe Wessely Wizard of OzPart Two - The Wessely Files. Do we have a wizard in our midst?