Community
Dedication. Expertise. Passion.
We are fortunate that there are people & orgs who advocate for change & take a critical stance on the systemic injustice for those with ME/CFS, Long Covid & those still vulnerable to the pandemic. To explore their work please have a mosey below.
Healthcare Hubris Blog
Jo Hunt
Home to the premier site of critical psychology. Analysis of the biopsychosocial school and its foray into hubris. Covering medically unexplained symptoms, ME/CFS & Long Covid
Academic
Prof Diane O'Leary
A must read for anyone interested in the systemic problems with medicine's approach to symptoms with psychological causes particularly in women. Clarity in the dualism morass.
Academic
Dr David Tuller
Academic at the Center for Global Public Health at the University of California, Berkeley, David counters & debunks dubious research in the fields of ME & Long Covid.
Academic
Prof Brian Hughes
Ardent advocate for pwME Brian has challenged the established false model with academic brilliance. A Prof of Psychology he bought light to the profound changes needed for the ME NICE Guidelines.
Doctor
Dr Rae Duncan
A leading voice in the medical profession about the short & long-term dangers of Covid19. Her video presentations about this subject are a must watch. Rae stands up for protections & research for CYP.
Film maker Story teller
Jen Brea
Jen's documentary, Unrest, & TED talk have been prime movers in shifting the paradigm about ME. She co-founded #MEAction a tour de force of pioneering activism. It is home to the #MillionsMissing.
Health Rising Blog
Cort Johnson
Outstanding blog on the latest research & treatment for MECFS, Long Covid & Fibromyalgia. Readable & insightful. The place to keep up-to-date. Some of the best journalism for ME & LC.
Putrino Lab
Prof David Putrino
Leading the way in safe rehabilitation & biological Long Covid research David is a stalwart supporter & ally of the community.
Doctor
Dr Binita Kane
Inspired by her own family's experience with Long Covid, Binita is a pioneering physician & advocate for paediatric Long Covid.
Doctor
Dr Claire Taylor
One of the only Drs in the UK to start an effective Long Covid clinic. A pioneering physician who routinely stands up for & treats Long Covid, ME, MCAS & POTS.
Patient Advocate
Tom Kindlon
Tom has been an exemplery researcher for pwME. Publishing with extensive analysis using a critical stance of harmful ME research. Known for countering the PACE trial.
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Video Project
Dialogues ME/CFS
Outstanding resource for education about ME/CFS for medics & the public. Funded by Wellcome this is the place to go to understand symptoms & history.
Blog
Margaret Williams
Key archive on the history of ME/CFS. A series of articles from 1986 to the present day. Evidence & anaylsis of the machinations of the Wessely School .
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Org
Team Clots
A group of researchers investigating clotting. Inclu. Prof Resia Pretorious, Prof Doug Kell, Dr Asad Khan, Dr Jaco Laubscher, Dr Caroline Dalton, Dr Binita Kane & Dr Rae Duncan.
Org
Clean Air Classrooms
Led by Michelle Wong, CleanAir Classrooms give paradigm shifting practical advice for keeping education safe.
Org
Independent Sage
The archive videos and website for Indi Sage. Dealing with Long Covid, workplace safety, the clinically vulnerable & stats. Includes Danny Altmann, Binita Kane & Stephen Griffin.
Patient Group
Patient-Led Research Collaborative
The group leading the way in the new paradigm. Patients with Long Covid pioneering the way in research, patient involvement. Enabling patient-led biomedical research.
Drs
Dr Speight & Dr Weir
Recognised experts in ME/CFS. They offer medical care & support for families going through unjust safeguarding proceedings. Dr Speight specialises in paediatrics.
Org
Tymes Trust
Fearless charity standing for the rights of children & young people with ME. Offering clear guidance & support against harassment and FII misdiagnosis.
Org
Clinically Vulnerable Families
​Supporting Clinically Vulnerable households through advocacy, evidence based information, and our peer network. Working for a safe, equitable future
Org
Long COVID Physio
Pioneering group leading the way in how to manage Long Covid. If you or family need guidance on pacing & energy management. Key in bringing safe rehab to the WHO & World Physio Guidelines.
Org
ME Action
An unparalled ME org based on direct action & consisting of a global grassroots network. Home to #StopRestPace & international protests for people with ME. One of the 1st to be there for Long Covid.
Org
Counter Disinformation Project
The leading source in the UK tracking and holding to account the network of disinformation especially in relation to children & schools. Fearless journalism.
Org
Physios For ME
A wonderful team that advocate, educate & research for safe rehab for people with ME & Long Covid. Aiming to improve physio management for people with PEM, post-exertional malaise.
Wiki
MEpedia
Incredible resouce for anything ME related. The wiki of our community. A must for any advocate & patient. Over 3000 articles on treatments, people, symptoms & flaws of the BPS model.
Org
World Health Network
A collaborative global organisation looking to inspire change for a safer world. Focusing on a healthier & more compassionate world through science & collective action. One to investigate or volunteer for.
Org
PolyBio
One of the pioneering organisations at the cutting edge of infection associated chronic condition research. Proactive, open minded & paradigm shifting. A group striving to get to the root cause
Research Org
OMF
Open Medicine Foundation funds open, collaborative research to discover treatments and a cure for ME/CFS and Long COVID. A true trailblazer in the biomedial research field.
Centre of Excellence
Bateman Horne Centre
Excellent source of medical & patient education on ME/CFS, Long Covid & Fibromyalgia. A leader in the fields of biomedical research, clinical care & support
