Open Letter Update: Solidarity, Engagement, and Next Steps
The response has been extraordinary. To date, the letter has received 1,200 individual signatories and the support of 58 organisations, including clinicians, researchers, patient advocates, and members of the public. This reflects a clear and growing call for scientific rigour, respectful discourse, and appropriate representation of evidence in discussions of IACC (infection-associated chronic conditions).
4 hours ago3 min read
Commentary on the Long Covid article by Alan Levinovitz in WIRED magazine
By Dr Elke Hausmann Audio available in Substack We are pleased to welcome the return of Dr Elke Hausmann as a guest writer. In this article she examines the controversial WIRED article which has sparked significant concern among patients and advocates for its portrayal of Long Covid, recovery narratives, and brain retraining approaches. What a headline. Ok, so generally journalists are not responsible for the headlines to their articles. But there are several tropes here, so
1 day ago7 min read
On Medical Misogyny with Dr Elinor Cleghorn
In this episode of the Pedantic Zebra Book Club, we’re joined by writer and cultural historian Dr Elinor Cleghorn to discuss her acclaimed book Unwell Women: A Journey Through Medicine and Myth in a Man-Made World.
Together we explore the long history of medical misogyny, the cultural myths that shaped women’s healthcare, and the enduring legacy of dismissal, disbelief, and diagnostic inequality. From hysteria and psychosomatic labels to chronic illness and modern medical
6 days ago39 min read
Cooling Tips 101
How to breeze through a heat wave with ME & Long Covid Audio version on Substack Heat can significantly worsen symptoms for people with ME and Long Covid, particularly for those with a strong dysautonomia (autonomic dysfunction) presentation. And preparation can make all the difference. It can very much feel as comfortable as a goth in summer - very unfun! This is not “just being bad with heat.” For many disabled people, heat increases physiological stress, symptom burden, an
May 225 min read
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