Open Letter Update: Solidarity, Engagement, and Next Steps
The response has been extraordinary. To date, the letter has received 1,200 individual signatories and the support of 58 organisations, including clinicians, researchers, patient advocates, and members of the public. This reflects a clear and growing call for scientific rigour, respectful discourse, and appropriate representation of evidence in discussions of IACC (infection-associated chronic conditions).
1 day ago3 min read
Commentary on the Long Covid article by Alan Levinovitz in WIRED magazine
By Dr Elke Hausmann Audio available in Substack We are pleased to welcome the return of Dr Elke Hausmann as a guest writer. In this article she examines the controversial WIRED article which has sparked significant concern among patients and advocates for its portrayal of Long Covid, recovery narratives, and brain retraining approaches. What a headline. Ok, so generally journalists are not responsible for the headlines to their articles. But there are several tropes here, so
2 days ago7 min read
On Medical Misogyny with Dr Elinor Cleghorn
In this episode of the Pedantic Zebra Book Club, we’re joined by writer and cultural historian Dr Elinor Cleghorn to discuss her acclaimed book Unwell Women: A Journey Through Medicine and Myth in a Man-Made World.
Together we explore the long history of medical misogyny, the cultural myths that shaped women’s healthcare, and the enduring legacy of dismissal, disbelief, and diagnostic inequality. From hysteria and psychosomatic labels to chronic illness and modern medical
May 2939 min read
Cooling Tips 101
How to breeze through a heat wave with ME & Long Covid Audio version on Substack Heat can significantly worsen symptoms for people with ME and Long Covid, particularly for those with a strong dysautonomia (autonomic dysfunction) presentation. And preparation can make all the difference. It can very much feel as comfortable as a goth in summer - very unfun! This is not “just being bad with heat.” For many disabled people, heat increases physiological stress, symptom burden, an
May 225 min read
Open Letter Urges Royal College of Psychiatrists to Align with Current Evidence
It is ME Awareness Day, and the publication of our open letter to the Royal College of Psychiatrists sits within a long and well-documented history of contested approaches to ME within psychiatry and adjacent services.
May 123 min read
On Medical Education for Long Covid and IACI with Prof David Putrino
In this special episode for Long Covid Awareness Day, Dr Rupert Higham, lecturer in Learning and Leadership from the Institute of Education at UCL speaks with Professor David Putrino, neuroscientist and rehabilitation specialist at the Icahn School of Medicine at Mount Sinai - and general legend!
Mar 152 min read
Big Cat Activism
Instead of a more formal book review, we wanted to hunker down to discuss two key themes in the book that we can carry forward in this line of unflinching oracles: embracing big cat vibes in our lives and activism and the reclaiming/reclawing (yes, there will be cat puns!) of anger as love.
Mar 46 min read
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