We Have Responded to the Royal College of Psychiatrists
Continuing the dialogue on ME, Long Covid and evidence-based psychiatric education Audio on Substack In June, the Royal College of Psychiatrists responded to our open letter concerning the framing of Long Covid at the Royal College of Psychiatrists International Congress. We welcomed the opportunity to receive a formal response. Rather than replying immediately, we took time to consult with many of the charities, organisations, clinicians, researchers and patient advocates wh
23 minutes ago3 min read
Long Covid Advocacy at the Royal College of Psychiatrists Congress - Now!
Hold your excitement! Today, on the 14th June, we are present and LIVE at the Royal College of Psychiatrists International Congress in Liverpool to share a respectful leaflet and our open letter directly with delegates. This is ahead of tomorrow's Long Covid presentations by Paul Garner, Trudie Chalder and Alan Carson.
Jun 145 min read
Open Letter: Solidarity, Engagement, and Next Steps
The response has been extraordinary. To date, the letter has received 1,200 individual signatories and the support of 58 organisations, including clinicians, researchers, patient advocates, and members of the public. This reflects a clear and growing call for scientific rigour, respectful discourse, and appropriate representation of evidence in discussions of IACC (infection-associated chronic conditions).
Jun 43 min read
Commentary on the Long Covid article by Alan Levinovitz in WIRED magazine
By Dr Elke Hausmann Audio available in Substack We are pleased to welcome the return of Dr Elke Hausmann as a guest writer. In this article she examines the controversial WIRED article which has sparked significant concern among patients and advocates for its portrayal of Long Covid, recovery narratives, and brain retraining approaches. What a headline. Ok, so generally journalists are not responsible for the headlines to their articles. But there are several tropes here, so
Jun 37 min read
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